Updating Privacy Policies for OpenNeuro Data Archive

Brisbane Convention & Exhibition Centre 

OpenNeuro is a BRAIN Initiative data archive that provides the ability to openly share data from a broad range of brain imaging data types following the FAIR principles [1]. OpenNeuro has adopted a public sharing model under CC0 [2] or PDDL [3] license, if the datasets are deidentified following the standards under the HIPAA. However, given the wide spectrum of neuroimaging data that has been, and will be, collected as part of the BRAIN Initiative, there is a critical need to equip OpenNeuro to hold more diverse neuroimaging data, which may differ in their specific privacy risks and in limitations on subsequent use of data. Sharing data with various levels of sensitivity and restrictions will require not only infrastructural support but also a carefully contemplated scheme to protect data privacy. As an effort to build this scheme, we devised an updated policy that delineates new privacy measures for data shared through OpenNeuro.